Lets take another 4 hour ride…

Back to Houston tomorrow.   Hopefully I will be told that I am all clear and I can keep living “normally”.

Everyone who reads this knows I sometimes “over-analyze” situations, and some may venture as far as to call me pessimistic.   Well, it’s not pessimism, it’s being human.  It’s a completely normal feeling to not be able to accept that I am REALLY OK.  Every day that goes by I feel closer and closer to the norm that used to be life, but then as I get closer to the appointments that COULD give me bad news I fall into somewhat of a lull.  Most of you that know me know I like numbers…  I hear from numerous people when I talk about it, “You’re gonna be just fine! You could walk down the street and get hit by a bus, or you could die in a car accident on the way to work.”  Well,  the chances of getting hit by a bus are 1 in 50 million, the chances of dying in ANY automobile related accident are 1 in 87.  My odds of dying within 5 years are 1 in 5.  Swallow that!  Those numbers are MINE, not some canned number from a chart about sarcoma.  Those numbers came from the doctor, using people from my age group with the same health status and lifestyles.    I try to be positive for everyone around me, but it’s very hard at times;  when I’m not, shit falls apart.

People still don’t know what to say when I tell them my story.  For somebody with, Cancer telling them “it’s gonna be OK” is not always the answer.  A lot of the time they just need somebody to listen.  That’s why professional counselors have jobs…  They just listen.   It’s human nature to try to help others feel good, but sometimes it’s just validation that is needed.  Just like it’s human nature to not accept that I AM surviving and the other shoe may NEVER drop.  I am 36 years old, I don’t smoke, I drink very little, I work out 3 times a week, my sugar intake is extremely low, I don’t use drugs, and I am a good person;  I have cancer.  If you think you are immune, you are way wrong.  It happens.

Here is a fact; nobody dies from nothing.  I understand that, but when you get labelled it feels a lot like a death sentence.  I wish Carley and I would have never asked about the “rates”.   Which leads to my advice to the 1 in 2 men, or the 1 in 3 women….  Don’t ask, you are better off.

They say, what doesn’t kill you makes you stronger….  I believe that; hell I’m living it.  I have learned to laugh harder, smile bigger, walk slower, breathe deeper, and love more.  I am learning that all of the important things in life are less important, and the things that were not important are truly important.  I wish each and every one of you could feel that, WITHOUT being sick of course.   I can say my relationship with my wife is better than it was, even before cancer.  I can say my relationship with the kids is better than before cancer.  I can say my relationship with myself is better than before cancer.  I don’t think cancer made me a better person, but I think it opened my mind to a better side of the person I was.   I just hope I get to experience this exceeding all statistics, odds, and numbers.  I have much left to do, I need time!

 


So too much medication can be a bad thing….

They gave me Narco to take every 4 hours…. Well they didn’t tell me that was borderline recreational use. I literally woke up every 15 minutes lat night feeling like my breathing had stopped. That’s why I never take pain pills. Everybody told me to stay on top of the pain and not get behind it or it could be worse. I’ll have you all know I only took 1 pill today a few hours ago, not the 2 they had prescribed, and I am feeling fine. Not taking the prescription also allowed me to drive to the store with Carley. It was a little uncomfortable, but I was able to drive nonetheless. I work on some things for work today, and that was good. It helped me focus on things other than the pain. Maybe I will be able to drive into work on Wednesday, if nothing else but to pick up some more to do at home. Regardless, I am here, I am tumor free and I plan on staying that way for the rest of my life. I am waiting on the call from MD Anderson to find out which day I go back to have this drain removed. They are thinking Thursday… I am way fine with that! It’s a huge inconvenience, but like Carley said… “It’s not a tumor!”. I’ll write more later just wanted all to know I am breathing and back at home!!

Love you all,

kp


Home and resting

Just wanted to let everyone know that we are home. Kris is resting.

Someone will be here all week to keep an eye on him, and he will probably be back in Houston on Thursday or Friday to have the drainage tube removed.

I’m sure he will give more details later.

Thanks for all the support and well wishing.


“The Site” (might make your stomach turn…)

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Good morning everybody….

… I am tumor free!!!! I’m in a ton of pain, but I will make it. Carley and I just saw the excision site and the unbelievable amount of stitches… 24 we can count just on the outside. We keep forgetting to ask the plastic surgery team the total count, even though the doctor was just here. We managed to get a picture of it before she covered it back up. I think it looks like a centipede? Will brought Kaitlyn and Coleman last night, so they stayed in the hotel with Will and Mom. Carley stayed in the room with me, she slept on the fold out recliner, and now says she wants one for the living room? Dad was here Thursday and Friday all day, he was leaving early this morning to beat the heat. John and Gay came by for a few hours, I was told. I think I remember them being in the recovery area with me and Carley. I know I remember the voices… I’m glad I had people come by.

Doctor came in this morning and asked if I wanted to go home today… I told him one more day would be the best, just because of the pain. He agreed and said he’d check with me this afternoon just in case. I was actually doing ok yesterday until they cleaned my drain out… You are supposed to strip the tube, GENTLY…. the nurses assistant that we had jerked on that thing like a crazy lady. Actually Carley and I think she is crazy! On that note, our day nurse is a bitch, but our night nurse is awesome. I don’t want to be negative, so I won’t go into details…. But you know they are mean when Carley will call out a stranger, she always tries to see the good.

Sorry if I didn’t call or text anybody back yesterday, I am still way groggy and tired. I am in room P1127 @ MD Anderson. I have a direct line that everybody is welcome to call (713) 834-8831 it rings to my room, and don’t worry about waking me if I’m sleeping Carley or Mom will answer. My cell doesn’t work well in the room. And i can really on answer it when i am waking around, YES I did say waking around… I waked down to the fountain with mom and Carley last night, and we walked to the Starbucks in the clinic this morning. It wears me out, but I need to do it so I heel faster and also avoid DVT.

They are on the way back with the kids, so I’m gonna hang up now!

Thank you all for your thoughts and prayers, and we will update later!

I love you all!

Kris


Best case scenario

So, Kris’ doctor said he was the star patient today– the one with no problems.

Yesterday as we went to all of the pre-op appointments, we kept hearing “well this is what we THINK will happen, but XYZ could also happen.” Well, none of the XYZ stuff happened.

The tumor had shrunk since the last measuring.

It came out cleanly without the tissue around it being infected with the cells.

The tumor had a lot of dead tissue from the radiation.

It was all the favorable end of the conditions we were led to expect.

Kris is now awake and talking. He’s feeling pretty good — I know this because he’s teasing the nurses about bringing him cheeseburgers and beer.

We will get a follow up with the doctors tomorrow and will know more about when he can come home.

The crazy thing is the lady next to us in the recovery room had just had a tumor removed from her BRAIN, and they said she could go in 24 hours!! What!?!

Will update soon.


Success!!!

The doctors just came out. The surgery went off as planned.

About a 15 cm section was removed and they were able to close it up without doing a skin graft from the other leg, which was a real possibility.

The margin tissue around the tumor showed no cancer.

He’s not awake yet, but we should see him within a few hours.


Here we sit…

Waiting on them to pull me back. I have yet to have an IV put in, but it’s coming. I also just found out I am to be intubated, not excited about that at all. Carley will update via the blog as updates are given by the surgeon, which is supposed to be every two hours. I love you all see you in a while!

Kris


X-rays are clear…

Met with Dr. Hunt, nice as always. They are expecting the surgery to last about 6 hours. We are now waiting on the plastic surgeon to call us back to discuss everything he is going to throw in. It’s all very trying today, but we are running through it pretty good. I’ll update later…


Appointments my butt!

Apparently the schedule they give you can be changed at any moment. We show up for chest x-rays at the lab this morning. I WAS supposed to have an EKG done right after, according to my schedule anyway, but that didn’t happen. I asked the lady, since I have another appointment in 15 minutes, what do I do? She told me to go to my next appointment and come back and continue waiting! Ugh! Seriously, do they not understand the point of an EKG? I’m supposed to be calm during this…. Instead they get their crappy attitudes and shove them down the patients throats. Probably wouldn’t bother me as much except for the fact I had just visited the cashier and paid them a crap load of money to be, apparently, talked down to.

Anyway, MRI went well yesterday. Had the chest x-rays done today to check for metastasis, cross your fingers on that one!

Now we are waiting for the Anesthesiologist to come in and tell us what’s next.

Stay tuned, more to come…..


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